Monday, April 16, 2012

a VERY short update

Hi everyone - I saw the Neuro-Muscular specialist today; his name is Dr Robert W. Neel. I again got the luck of the draw - he is FANTASTIC. Not only was he incredibly thorough - but kind and compassionate. He genuinely wants to help, and figure out what is going on. He looked right in my eyes and said, "I am sorry this happened to you. I am going to do anything I can to help you, and work to improve your quality of life". I could tell he meant every single word.

First up is blood work, and getting me some comfort from the muscle spasms/contortions, and breathing issues. Working against the clock though as what ever the hell is going on it is progressing - fast. I will update more as I know things. A GINORMOUS thank you to Kelly and Patrick for taking care of CDSN, while being hugely supportive. Finally, thanks to all of you for the continued support and kindness ... it means more then any of you will ever know.

4 comments:

  1. I am hoping that you are getting what you need, old man.

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  2. So very sorry that your going thought this hard and trying time in your life! Hope you can feel all the love and support your fans are sending to you at this time ... Me included! I think you might of found that special doctor that's going to make a difference in your life! Good luck with everything you have I font of you now , thinking of you ...take care

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  3. Hey. I believe I know the Dr you saw/see. I didn't realize you were local, although your name is familiar. He's a great neuro & great colleagues! He sent us a rare/hard to diagnos, patient that I recall doing lots of research about prior to the patients initial visit.

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  4. By the way, that's from Alison aka AMR9chickadees

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