Friday, September 18, 2009

My First Entry

Hello! My name is Jason. In this day and age I figured I'd start blogging. I am 29years old and live in Cincinnati, OH. I have suffered from Crohn's Disease since I was a child, but unfortunately was not diagnosed until age 19 in 1999. For anyone who doesn't know what Crohn's Disease is: An autoimmune disease where a protein (TNF) builds up in the body. Everyone has TNF, but people with Crohn's Disease do not reduce the TNF naturally. This causes a build up, leading to inflammation and damage throughout the entire digestive system- mouth all the way down. Wikipedia has a WONDERFUL page which can explain better then I ever could on here! http://en.wikipedia.org/wiki/Crohn%27s_Disease is their link. I have been on everything from prednisone to remicade. Currently I am on Humira, which is helping - but have had some setbacks. I've been on disability since 2004, and basically been in life limbo. I know I can't worry about what I can not control, and change what I can. Live one day at a time, and keep on fighting. It will never get the best of me..and I know it could always be worse.

I wish to spread as much awareness as possible. I truly feel the more people are educated, the better chance a cure can be researched and discovered. There is a non-profit The Crohn's Disease and Colitis Foundation of America (CCFA). They are amazing, and really worth looking into. http://www.ccfa.org/

Well I think that's all for now! Will keep updating....Anyone who has taken the time to read, Thank you!! I will keep writing, so check back soon :)

-Jason

6 comments:

  1. well done for starting this blog.hoprfully it will give some support to fellow sufferers,good luck and will see you on twitter

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  2. Thanks Keyth! I appreciate the support and comment :)

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  3. Good Job Jason!!! I am impressed with your decision to do this.

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  4. Hi Jason its Amanda (Cookiebird) from Twitter. Your blog was moving and quite difficult to read..so much suffering. I hope that you are successful in spreading the word...keep well...see you on twitter...looking forward to reading the updates..

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  5. Thank you to both Brenda and Amanda! I am so grateful for your support! I am going to do my damnedest to spread the word, and try to help some people along the way!

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  6. Jason, I am so glad i met you.... found you. You are a sweet person and a joy to be around. I feel so much support at CDSN and thank you for sharing your story.

    Much admiration and understanding,

    Joanna

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